My Offerings
Replace Fear With Hope
Being parents of a child with Congenital Diaphragmatic Hernia, death is a fear that weighs over you constantly and you worry you’re expected to “get over it”. Discover tools that will help you cope and live everyday with your child with hope, easing the fear that inherently comes with your daily life.
Providing A Safe Space
Information regarding surgeries, medical procedures, and aftercare can be intimidating because processing medical information is exhausting and confusing. Get the safe space you need to process the painful challenges your child will/has undergone medically. Foster the strength needed to provide the best aftercare you and your child need.
Communication For Support
You shouldn’t cope alone. Learn communication skills that will help you reach out to friends and family, building a support system and understanding your challenges. They desire to support you, but simply don’t know how. Get resources that will allow support to navigate your life with strength and guidance.
About Me
Hi!
My name is Natural. In 2012, pregnant with my first child, I went in at 22 weeks for my gender determination ultrasound, only to learn that my son’s liver was in his chest cavity. What did this mean? He was suffering from a condition called Congenital Diaphragmatic Hernia. This is a medical anomaly where the diaphragm does not fully develop, allowing the lower organs to move into the chest cavity, and prohibiting lung growth and heart development. His was a severe case, and as my pregnancy continued, his prognosis grew worse. By the time he was born, all of his lower organs were up, and he was given a 10% chance of survival. Having already chosen his name, I realized that we had one choice before us; to Fight for Legacy.
Our family made several resolutions to fight for Legacy’s survival, including relocating and enduring over 26 surgeries and medical procedures. After 10 months, Legacy was able to come home to a virtual hospital room; with 24/7 nursing, a tracheostomy, a feeding tube, oxygen support, lots of medication, and more surgeries and procedures to come. Ultimately, I am so glad we did, because after fighting for Legacy, a 10% chance of survival has resulted in him just celebrating his 10th birthday!
Ultimately, our experience as a family has created in me a passion to offer coping support to other families struggling with the same challenges, offering the very coping skills that no one was able to offer me, particularly over those first few years. I would like to help families figure out what I had to figure out on my own; how to cope with it all!
About Me
Hi!
My name is Natural. In 2012, pregnant with my first child, I went in at 22 weeks for my gender determination ultrasound, only to learn that my son’s liver was in his chest cavity. What did this mean? He was suffering from a condition called Congenital Diaphragmatic Hernia. This is a medical anomaly where the diaphragm does not fully develop, allowing the lower organs to move into the chest cavity, and prohibiting lung growth and heart development. His was a severe case, and as my pregnancy continued, his prognosis grew worse. By the time he was born, all of his lower organs were up, and he was given a 10% chance of survival. Having already chosen his name, I realized that we had one choice before us; to Fight for Legacy.
Our family made several resolutions to fight for Legacy’s survival, including relocating and enduring over 26 surgeries and medical procedures. After 10 months, Legacy was able to come home to a virtual hospital room; with 24/7 nursing, a tracheostomy, a feeding tube, oxygen support, lots of medication, and more surgeries and procedures to come. Ultimately, I am so glad we did, because after fighting for Legacy, a 10% chance of survival has resulted in him just celebrating his 10th birthday!
Ultimately, our experience as a family has created in me a passion to offer coping support to other families struggling with the same challenges, offering the very coping skills that no one was able to offer me, particularly over those first few years. I would like to help families figure out what I had to figure out on my own; how to cope with it all!